Family Fighting For Research For Sons Rare Genetic Disorder

Family Fighting for Research for Son’s Rare Genetic Disorder

Family advocates for research into rare disorder that claimed infant son

Family Fights for Cure for Rare Genetic Disorder

Toronto family tries to raise $3M to treat son's rare genetic disorder

CBC News: The National

Two Families Fighting to Defeat their Sons’ Rare Genetic Disorder

Mom leads fight for son with rare disease

Fight to save boy from rare genetic disorder

KPRC 2 Click2Houston

Galactosemia - A family's fight against this rare orphan disease

Boston Children's Hospital

Family Fights for Universal Screening for Son's Rare Disease

Houston family fights for a cure to rare genetic mutation

Family fights to find a cure after 2 children are diagnosed with fatal genetic disease

Good Morning America

Beaverton couple fights for their son after his diagnosis with 'ultra-rare' genetic disorder

Southport parents fight to save their son and others from rare genetic disorder

Greer family fights to find cure for rare genetic disorder

Parents race to save toddler’s life after rare genetic disease diagnosis | Nightline

Hollywood boy diagnosed with rare genetic disorder after months of uncertainty

Baby with rare genetic disorder teaches lesson of love and beauty in her short life

ABC Action News

Rare, complex genetic disorder affects four siblings

WCVB Channel 5 Boston

Valley family creating sense of community for those fighting rare disorders

Meet One of 20 Kids in the World Diagnosed with Rare Disorder